Native American Cancer Research Corporation (NACR) and/or Native American Cancer Initiatives, Inc. (NACI) faculty provide local, regional, national, and international trainings on different issues throughout the year. Contact Linda Burhansstipanov at Burhansstipanov@gmail.com or 303-550-5181 or Lisa Harjo at LisaHarjo@aol.com or cell: 720-987-8944.
These topics are to assist with evaluating the effectiveness or impact of a program or intervention.
These topics are to help staff who are new to making public presentations improve their skills when working with small or large audiences. NACR staff all are trained, credential educators and each have taught in academic and community settings for more than forty years.
These sessions were created to help staff who have little to no experience working with computers. They are tailored to the participants’ needs. These can be held as separate, small group sessions for beginners or intermediate computer users in conjunction with other training topics.
CTENA provides easy-to-understand, interactive educational workshops to increase Native Americans’ awareness and understanding of clinical trials and to facilitate decision making about clinical trials participation. The curriculum includes twelve objectives. These workshops have been held in geographically diverse settings with intertribal participants (e.g., Anchorage, AK, Albuquerque, NM, Denver, CO, and Rapid City, SD). The average increase in knowledge was 25%. Each objective includes a participant interactive activity:
GENA®, provides a Native-specific science curriculum comprised of 29 objectives. These objectives can be individually combined to create an educational program on genetic science that is tailored to a program’s specific needs. The focus of GENA® is to help workshop participants increase their genetic knowledge to assist with informed decision-making regarding genetic science, testing, or research opportunities. All objectives include interactive participant exercises created to increase learning. GENA® workshops have been evaluated for success with Native American college students and with selected intertribal community meetings from 1999 through 2003. The increase in genetic and cultural knowledge averaged 30% and was statistically significant (p=.001) and received high praise from participants.
NACR staff and consultants (Linda B and Lynne Bemis, PhD) continue to conduct an average of three GENA® tailored workshops each year throughout the USA. Although there originally were 29 objectives, over the last decade, some were combined together and others, were of no interest to I/T/U communities (e.g., 3 HapMap objectives). The subsequent 18 GENA® objectives grouped as commonly presented, follow:
ETHICAL, LEGAL, SOCIAL, CULTURAL ISSUES
TRIBAL RESEARCH APPROVAL PROCESSES
ETHICAL, LEGAL, SOCIAL, CULTURAL ISSUES
Objective 29. Distinguish between facts and myths of genetic issues of concern to Natives. (60 minutes)
Objective 26. Describe parts of a cell (45 minutes)
Objective 2. Review basic principles of cell biology and genetics (e.g., cell structure, location of DNA and RNA, protein expression, transcription, and translation) (45 minutes)
Objective 5. Identify the types of genetic research that are of interest / priority to their home Native communities (45 minutes)
Objective 7. Review genetic concepts. (45 minutes)
Objective 8. Understand classical patterns of inheritance and cultural traditions related to these patterns. (60 minutes)
Objective 9. Describe genetic testing. (30 minutes)
Objective 10. Examine selected Native American cultural and ethical issues related to genetic testing (60 minutes)
Objective 11. Identify common misconceptions related to genetic testing. (30 minutes)
Objective 12. Analyze the benefits and risks of genetic testing. (30 minutes)
Objective 13. Determine factors that should be considered when deciding whether or not to take part in genetic testing. (10 minutes)
Objective 14. Examine current genetic research-related issues and their potential impact for Native communities. This objective has 3 different versions: stem cells, microRNA or nanotechnology (60 minutes each version)
Objective 16. Describes benefits and drawbacks to pharmacogenetics (60 minutes)
Objective 25. Identify advantages and limitations of selected models for human diseases. (60 minutes)
TRIBAL RESEARCH APPROVAL PROCESSES
Objective 19. Analyze the Tribal Research Approval Process relevant to genetic research. (60 minutes)
Objective 21. Recognize the roles of the health care team involved with cancer genetic counseling. (20 minutes)
Objective 22. Describe culturally acceptable methods of collecting a family history. (45 minutes)
Objective 23. Examine selected ethical, legal, and cultural issues of genetic counseling (30 minutes)
NACR staff initially based this 2002-2005 program (after receiving permission) on Module 4 of the “End-of-Life Nursing Education Curriculum” (ELNEC) as a model. Several unique features evolved as the project team attempted to modify the curriculum to be culturally relevant to Native Communities. Based on intertribal working group and pretest findings, rarely does the Native community have access to trained professionals to assist the family when someone is dying. Thus, the focus of the "Native American Palliative Care" Curriculum shifted from relying on trained and qualified nurses to provide palliative or end-of-life care to focusing on family members who are likely to have no medical background at all. The five initial objectives of the "Native American Palliative Care" gradually were modified to:
This training originally was developed in 2007 with funding and continuing education credits from the Centers for Disease Control and Prevention. The Project Team conducted the trainings at CDC in Atlanta, GA, state departments and tribal communities primarily throughout the Northern and Southern Plains, West Coast and Rocky Mountain regions.
This workshop is designed for public health professionals, Native program directors and staff who are working with health and cancer prevention / early detection programs. The overarching goals of this 6.5 hour training are: (1) To educate public health professionals on the initial steps in building tribal and government relationships to improve health outcomes for Native American populations; (2) To educate public health professionals in building relationships with tribal and urban programs to improve interactions and communications related to health and health outcomes for Native American populations; and (3) To increase understanding of successful and effective AIAN cancer public health program planning, implementation and evaluation. Participants will develop skills in culturally respectful strategies for effective working relationships between (1) Native health programs and (2) state public health programs, academic or clinical health settings; modifying evidence-based interventions, understanding AIAN learning styles, and working with electronic evaluation programs. Sessions will include interactive activities and problem-solving exercises focused on specific challenges and solutions. It is helpful to have completed Cultural Competence 101 prior to enrolling in this training. The objectives follow:
This course is designed for students who have already had some training in basic epidemiology. The overall goal of this short course is to familiarize students with development of a research idea into the NIH format, using a 2-page grant summary template to help guide this development. Students will develop skills in developing research proposals using National Institutes of Health (NIH) federal grant submission format. Sessions will include practical exercises and time to work on grant components. Sessions will address specific challenges that are commonly encountered in developing and submitting NIH federal research proposals. Interactive activities will include critiquing one another’s drafts for designated components within a grant. Different types of grants and key elements of their construction will be summarized, but the focus will be on NIH grants. Examples of topics include: