(as recognized by the Academy of Oncology Nurse and Patient Navigators (AONN+)
Indigenous Peoples Navigation Network (IPNN) is a virtual support network for navigators who work with Indigenous Populations. Native American Cancer Research Corporation (NACR) has implemented patient navigation services since 1994 and conducted Native Patient Navigation (NPN) trainings since the latter 1990s. Following these trainings, Patient Navigators (PN(s)) repeatedly expressed appreciation for the opportunity to talk, network and collaborate with other PNs who work within Indigenous settings. Through NACR's involvement with organizations such as the Academy of Oncology Nurse and Patient Navigators (AONN+), we were able to create an international Indigenous network to help support one another in our cancer navigation efforts.
The next IPNN will be early fall, 2023 and will highlight Marilyn Roubidoux, MD (Iowa Tribe of Kansas and Nebraska) University of Michigan Department of Radiology, her colleague who will be talking about cervical cancer home tests and Emily Gentry, RN from AONN+ to discuss many resources available free-of-charge. The date has not yet been set.
NOTE: All IPNNs meet virtually and are held on a Tuesday for USA and Canada and Wednesday for New Zealand and Australia, 5:00 MOUNTAIN Time (please convert the time to your time zone). Most webinars are 90 minutes duration
Indigenous Peoples' Navigation Network (IPNN, pronounced, "I pin")
There are both cultural and geographic challenges and solutions that may be unique to Indigenous communities and the Patient Navigators who work in those areas. Many Navigators work in isolation. The focus of IPNN is on sharing stories of how navigation programs have overcome challenges in culturally respectful ways. Such stories may help PNs working in another region or continent try something new or modify what was done to be locally appropriate to one's setting.
Provide a virtual support program to address culturally and geographically unique challenges and solutions of Indigenous Navigation programs.
Cancer Patient Navigators who work within Indigenous programs in the USA, Pacific Islands, Canada, New Zealand and Australia.
There is no fee. You would be expected to attend 2-hour virtual meetings, held at least quarterly. The goal is to be supportive of navigators who work within Indigenous communities and the members to feel comfortable to share their stories, lessons learned or request help. Additionally, members will suggest topics for which they would like more information (education topic) for subsequent gatherings. IPNN is to help us all learn more about one another and to reinforce "we are all related". An example of an agenda may be:
Send your name, address, work or cell phone and email to Burhansstipanov@gmail.com
Click on the blue font link(s) below to access the resource
Guide to Accredited Certification for PNs
Navigation Resources recommended by the Workforce Development Task Group
Oncology Navigation Standards of Professional Practice
PN competencies and training by Workforce Dev Task Group
PN Toolkits and Resources recommended by Workforce Development Task Group
Overview of AONN+ and Native American Cancer Initiatives PN Training Oppt & Resources
BMSF panel discussion Presented and moderated by Michele
Addressing Cancer Disparities Among American Indians in Western South Dakota
AUS Aboriginal: Addressing Patients' Unsolved Tensions
AUS: Indigenous PN Intervention in Queensland, AUS
AUS: Staff Attitudes towards Unmet Needs
AUS: Aboriginal Patients and Support Services
AUS: Cultural Respect for Indigenous Navigators
Ka`opua_Culture, SDOH and Palliative Care in Pacific Basin
Ka`opua_Developing Tautai Lavea'i, a Breast Cancer Patient Navigation Program in Am Samoa
Ka`opua_Research Capacity Strengthening in Am Samoa
Ka`opua Book Chap that accompanies handout
2022-08-04, Redwood, Diana handout, "Improving CRC screening in Alaska Tribal Health System through patient navigation and community outreach"
CSC’s Precision Medicine Plain Language Lexicon
AONN+ Poster on Plain Language & Precision Medicine
Common Cancer Testing Terminology
CSC’s Precision Medicine educational materials available at no cost
Talking about Biomarker Testing
Consistent Common Cancer Testing Terms
Claire Saxton, CSC, slide deck from 2022-10-11
We did not begin recording webinars until March 16, 2022. There are multiple parts to each webinar. Select the clip to view.
IPNN (2022-03-16) Participant Self-Introductions
PONT definitions and AONN_ Metric Toolki+
Plain language for genetics and Precision Medicine
IPNN Walking Forward Panel Presentation