What is “Native American Cancer Education for Survivors” (NACES) and who is it for?
- An educational program designed to help you improve your quality of life.
- For Native American breast cancer survivors and those who care for them
- A research study to learn:
- What types of education information are of most use to you
- If information can be adapted to fit you based on answers you provide to a number of surveys
- Information is available to you in two ways:
- Directly on the Internet
- With the help of a Native Patient Advocate
- Most of the information may be useful to people with other types of cancer
- Non-Natives are welcome to use the information
- Any information you provide is protected in two ways:
- It is stored in a separate, encrypted database
- The Privacy Broker is the only one who has this information
What will I find here?
- Education information about breast cancer
- Surveys:
- To adapt the education information to fit you
- To develop future education topics
- Resources
- Examples of questions for you to ask your provider
- Stories from Native American Survivors
- Storytellers talking about surviving and dealing with cancer
Other symbols « show the symbols next to each item ».
- The hummingbird on the tree shows you where you are
- The lit-up leaf shows you what topic youre in
- The question mark gives you questions to ask your provider
- The Storyteller gives you a story based on several other Native survivors to help show you how others have dealt with a problem
- The bear gives you the toll free phone number to reach the Privacy Broker in case you have forgotten your code name or need a new one.
- The Advocate gives you the toll free number to reach the Native Patient Advocates who can help you get the education information or other information not yet available on the page
- The teepee returns you to the NACES main page
- The turtle tells you when there is more information about a specific topic or issue
What we would like you to do while you are in the tree.
- Over the first few visits to the tree, we would like you to answer at least the first three surveys.
- You can go to any of the four branches ready for you to use:
- Improving patient-provider communication
- Dealing with breast cancer and diabetes
- Unmanaged cancer pain
- Clinical trials
- When you are done looking at a topic, we would like you to tell us your opinion about the information.
- What did you like?
- What would you like to have changed?
- What parts were most useful to you?
- Did you learn something you didnt know before?
- Was something missing that you wanted?
Whenever you have difficulty or want to talk to someone, you may contact the Patient Advocates at 1-800-537-8295.
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