Health resources can be overwhelming, smothering survivors with irrelevant information, and seeming out of touch with the needs and point of view of individual survivors . This web site overcomes these problems with interactive and personalized information. The following are the kinds of interactivity on this site:
Patients can choose how they identify themselves, and personal aspects like their preferred "home" icon.
Survivors are invited to complete an online profile - an intake survey - about their current situation. The information on this site is like a "tree" of information, and when patients view a map of the site, the "leaves" which are relevant to the patient are highlighted.
Culturally appropriate content
The site content adapts based survivor profiles. For example, survivors will be able to choose whether they wish to be referred to as "Native Americans," "American Indians," "Alaskan Natives," and so on. The web pages will automatically update to match these cultural preferences. In addition, we are currently working on technology so that most of the site is available in high- and low-literacy versions.
Patients assemble a phrase, and listen to a native speaker communicating to their provider. This is a contextual and ever-changing interactive feature which can create thousands of different phrases.
Some concepts are best taught by example. For instance, to teach survivors how to speak assertively to their providers, our interactive "I messages" lets survivors assemble thousands of different kinds of statements which they could say to their provider to more effectively communicate their needs.
The interface is graphically responsive, making it easier and more intuitive for patients to get information. For example, the login process invites survivors to point at animated icons to select their "code name." Quizzes have a strategic pause between question and answer, as survivors test what they have learned.
Example of a caricature developed to illustrate pain management issues. Other caricatures are in development for diabetes and communication.
Stories and vignettes
The site is filled with stories and vignettes. Survivors can experience examples of other real and fictionalized patients who are going through problems just like theirs. Some of these stories are described in text, and others are audio or video.
Two-way information flow
Our project also draws from the community. Survivors contribute information and share their knowledge, unique experiences or opinions with others. The individual educational modules are improved through iterative design, by continually soliciting evaluation from users throughout the project development.
Example of a mini-quiz, to check-in and see if a patient fully understood a page.
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We often ask survivors questions to prompt their thinking. Some questions are rhetorical. Some questions are mini-quizzes in the pages to help survivors check that they understood what they were reading.