Lymphedema Stories
Resources for Lymphedema

This section includes information about getting help for you or your family while dealing with side effects from your treatment.

Living Beyond Breast Cancer has published a Guide to Understanding Lymphedema. Below is a link to the website to view the booklet on line. Go to the second link below to order free copies of this and other LBBC's educational materials.
http://lbbc.org/Understanding-Breast-Cancer/Guides-to-Understanding-Breast-Cancer/Guide-to-Understanding-Lymphedema/%28language%29/eng-US

The National Lymphedema Network (NLN) http://www.lymphnet.org/

  • A toll-free recorded information line: 1-800-541-3259
  • Referrals to lymphedema treatment centers, health care professionals, training programs, and support groups
  • A quarterly newsletter (LymphLink), with cutting edge articles and information about medical and scientific developments, support groups, pen pals/net pals, an updated resource guide and more
  • Educational materials for health care professionals and patients


  • The National Cancer Institute's Physician Data Query (PDQ) Patient Information On Lymphedema :
    http://www.cancer.gov/cancertopics/pdq/supportivecare/lymphedema/Patient/page1




top of page